Program under definition
Webinar
Presentation of the International School on Rare Diseases
October 23, 2026
(h 14.00 – 15.30 CET Time Zone)
14.00 – 14.15 | Welcome and introduction to the International School on Rare Diseases
Chairs: Steven Groft (USA), Emilio Roldan (Argentina)
14.15 – 14.30 | Foundations of Public Health in rare diseases
Rumen Stefanov (Bulgaria)
Manuel Posada (Spain)
14.30 – 14.15 | Rare Diseases: Concepts & Systems
Cynthia Tifft (USA)
Maria Teresa Acosta (USA)
14.45 – 15.00 | Undiagnosed Diseases & Approaches to Diagnosis
William Gahl (USA)
15.00 – 15.15 | Integrating rare diseases into One Health
Domenica Taruscio (Italy)
Alberto Mantovani (Italy)
15.15 – 15.30 | Questions and Answers and Conclusions
Speakers
Maria Teresa Acosta, ICORD Secretariat, NIH, USA
William Gahl, NIH, USA
Steven Groft, ICORD Board Member, USA
Alberto Mantovani, Study Center KOS- Science, Art, Society, Italy
Manuel Posada, Full Research Professor, MD, PhD. Coordinator of the Iberoamerican Network of Health Expert on Rare Diseases (RIBERSER), Foundation CSAI, Ministry of Health, Spain. ICORD Auditor.
Emilio Roldan, ICORD Board Member, Argentina
Rumen Stefanov, ICORD Past President, Bulgaria
Domenica Taruscio, ICORD Board Member, Former Director National Center Rare Diseases, Istituto Superiore di Sanità, Study Center KOS- Science, Art, Society, Italy
Cynthia Tifft, ICORD President, NIH, USA