Manuel Posada

Manuel Posada, Research Full Profesor, MD, PhD in Medicine. Specialist in Internal Medicine and also specialist in Public Health and Preventive Medicine, Autonomous University, Madrid, Spain. Expert in areas such as multivariate analyses, medical statistics and research methods.

Current position: Director of the Institute of Rare Diseases Research (IIER), Institute of Health Carlos III, and lead of a broad range of rare diseases activities in Spain in areas such as epidemiological and public health research. He is also the Director of the National Biobank on Rare Diseases (ISCIII) and the National Rare Diseases Registry.

Director of a WHO-Collaborating Center 1996-2011.

He was acting as the Spanish representative (MoH) at the EC Action Plan on Rare Diseases (1999-2003) and after that in the EC Rare Diseases Rask Force (2004-2009). Independent expert of the Commission Expert Group of Rare Diseases (CEGRD), European Commission and also of the Advisory Board of the European Commission Platform Rare Diseases Registration.

Also member of the Institutional Committee of the Spanish National Strategy of Rare Diseases on behalf the ISCIII and the Funders of Constitutional Committee of the International Rare Diseases Research Consortium (IRDiRC)

He was elected as a Secretary of ICORD (2012-2014), President-Elect (2014-2016) and President 2016-2019.

Project leader of several research projects and author of more than 150 papers in national and international peer review journals. Editor of the book entitled Rare Diseases Epidemiology, Springer, 2010 and Rare Diseases Epidemiology: Update, Springer, 2017