Aims

  • To organise ICORD Annual Meetings and workshops
  • To promote research, ethics, policies and actions on rare diseases and orphan products in all regions of the world
  • To facilitate and provide a global forum for all stakeholders for effective communication, formation of opinion and public debate, concerning rare diseases and orphan products
  • To enhance international discussion, cooperation and coordination of research, policies and actions of all bodies active in the field of rare diseases and orphan products
  • To exchange best practises between existing bodies and develop international approaches and tools to address common issues in rare diseases and orphan products