ICORD supports the UN Resolution, 16th December 2021

ICORD supports the UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families” and devotes efforts to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness.

Please click here to see the draft resolution.

IX International HTA Symposium. "Impact of EU HTA regulation on rare diseases and orphan drugs. Date: 7 October 2022. More information

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RARE DISEASE DAY AT NIH 2022. Feb. 28, 2022 More information

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International Course Training on strategies to foster solutions of undiagnosed rare disease cases More information

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ICORD supports the UN Resolution, 16th December 2021 More information

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The Board of ICORD and the General Assembly have approved the first Honorary Members of the society. More information

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ICORD will organize a webinar on Thursday, 20th May 2021, at 11am (Time in Bogotá) and 6pm (Time in Madrid) with the title "Are laws the solution for rare diseases?". More information

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After the celebration of the General Assembly, the ICORD members have voted a new Board. More information

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ICORD joins with more than 300 million people, their families, and caregivers worldwide in the celebration of Rare Disease Day

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The report of the Webinar held in July 15th, 2020 entitled ‘Best Practices: Renewing Rare Diseases. Trials in the Age of COVID19’ is now ready.

See the summary report