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ICORD

International Collaboration on Rare Diseases and Orphan Drugs

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ICORD supports the UN Resolution, 16th December 2021

ICORD supports the UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families” and devotes efforts to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness.

Please click here to see the draft resolution.

Author ICORDPosted on December 17, 2021

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NEWS

RARE DISEASE DAY AT NIH 2022. Feb. 28, 2022 More information

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International Course Training on strategies to foster solutions of undiagnosed rare disease cases More information

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ICORD supports the UN Resolution, 16th December 2021 More information

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The Board of ICORD and the General Assembly have approved the first Honorary Members of the society. More information

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ICORD will organize a webinar on Thursday, 20th May 2021, at 11am (Time in Bogotá) and 6pm (Time in Madrid) with the title "Are laws the solution for rare diseases?". More information

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After the celebration of the General Assembly, the ICORD members have voted a new Board. More information

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ICORD joins with more than 300 million people, their families, and caregivers worldwide in the celebration of Rare Disease Day

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The report of the Webinar held in July 15th, 2020 entitled ‘Best Practices: Renewing Rare Diseases. Trials in the Age of COVID19’ is now ready.

See the summary report

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  • Society & Membership on 8th April'22
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  • About ICORD
    • Welcome to ICORD!
    • Aims
    • ICORD Position Statement
    • Statement from UNDP
    • Board, 2021-2023
    • Society & Membership
      • Honorary Members
    • Payment Information
    • Contact
  • Upcoming Events
    • Future ICORD Meetings
    • ACCORD Workshops
    • Courses
  • Past initiatives
    • Ercal.icord.es
    • UN’s NGO Committee for RD
      • Inauguration meeting
    • Training courses
  • Past Events
    • ICORD webinar – 20th May 2021
    • ICORD webinar – July 15, 2020
    • ICORD Tel Aviv 2019
    • ICORD 2018 Stockholm
    • 2nd Annual RDI Meeting
    • ICORD 2017 in China
    • ICORD 2016 Cape Town
      • Photos ICORD 2016
      • Programme and Presentations
    • Launch of RDI
    • 22nd Workshop of ERTC
    • ICORD 2015 Mexico City
    • ICORD 2014 Ede
      • Presentations ICORD 2014
    • ICORD ACCORD 2014
    • ICORD 2013 St Petersburg
    • ICORD 2011/2012 Tokyo
      • Presentations ICORD 2011/12
    • ICORD 2010 Buenos Aires
      • Presentations and Workgroup Reports
    • ICORD 2009 Rome
      • Presentations ICORD 2009
    • ICORD 2008 Washington DC
      • Presentations ICORD 2008
    • ICORD 2007 Brussels
      • Presentations ICORD 2007
    • ICORD 2006 Madrid
      • Presentations ICORD 2006
    • ICORD 2005 Stockholm
      • Presentations ICORD 2005
      • Marlene E. Haffner’s Speech
      • Programme Committee
      • Organisation Committee
    • Swedish Satellite Meeting 2005
      • Talarnas presentationer
  • Useful Links
  • News
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