ICORD supports the UN Resolution, 16th December 2021

ICORD supports the UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families” and devotes efforts to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness.

Please click here to see the draft resolution.

RARE DISEASE DAY AT NIH 2022. Feb. 28, 2022 More information

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International Course Training on strategies to foster solutions of undiagnosed rare disease cases More information

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ICORD supports the UN Resolution, 16th December 2021 More information

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The Board of ICORD and the General Assembly have approved the first Honorary Members of the society. More information

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ICORD will organize a webinar on Thursday, 20th May 2021, at 11am (Time in Bogotá) and 6pm (Time in Madrid) with the title "Are laws the solution for rare diseases?". More information

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After the celebration of the General Assembly, the ICORD members have voted a new Board. More information

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ICORD joins with more than 300 million people, their families, and caregivers worldwide in the celebration of Rare Disease Day

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The report of the Webinar held in July 15th, 2020 entitled ‘Best Practices: Renewing Rare Diseases. Trials in the Age of COVID19’ is now ready.

See the summary report