Welcome to ICORD!

International Collaboration on Rare Diseases and Orphan Drugs

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals.

The mission of ICORD is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness. Read more…

Ongoing activities

  • The ICORD annual meeting in Tbilisi, Georgia has been postponed. We will post the next dates as soon as the situation of the pandemic in that region is safe.


  • This strategy has been called ERCAL because of the name of this action in Spanish.  The success of the ICORD congress held in Cape Town (South Africa) and the publication A call for global action for rare diseases in Africa, writing by Baynam GS, Groft S et al, Nat Genet. 2020 Jan;52(1):21-26. https://pubmed.ncbi.nlm.nih.gov/31873296/, led ICORD to organize the first meeting addressed to country-specific discussions of rare diseases activities in the ERCAL region, which was held in March 16th, 2021. (Link
  • After several meetings, in which ICORD members were supporting this strategy (see past actions), it has been decided to leave the ERCAL initiative  (Ordinary Board Meeting ICORD Tuesday, 14th December 2021) and create a new collaboration with Latin American countries under an ICORD criteria, which will be decided by the ICORD Board  (more information soon).
Of note

A commercial organisation, OMICS International, arranges a meeting with a name identical to ICORD, “International conference on Rare Diseases and Orphan Drugs”. Please note that ICORD is not involved in the organisation of this event.

En cumplimiento del artículo 10 de la Ley 34/2002, del 11 de julio, de servicios de la Sociedad de la Información y Comercio Electrónico (LSSICE), se establece la siguiente información:
Nombre de la asociación: International Conference on Rare Diseases and Orphan Drugs (ICORD.
Dirección de correspondencia:
Hospital Universitari Vall d’Hebron – Institut de Recerca (VHIR)
Passeig de la Vall d’Hebron, 119-129, 2a planta, Ed. Mediterrània
08035 Barcelona, Spain
Email: icord@icord.es
Inscripción en el Registro nacional de Asociaciones
: Sección 1ª / Número nacional 617988, de fecha 18 de julio de 2019
Número de identificación fiscal: G67389460
Reclamaciones, cancelación de pedidos y devoluciones: Dirigirse por carta o email a las señas mencionadas
Política de Protección y privacidad